Who We Are

Welcome to the Huntington's Disease Society of America's New York and New Jersey Region. Our region includes the following chapters: Greater New York Chapter, New Jersey Chapter, Albany New York Chapter, and Upstate New York Chapter.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence in Our Region

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 39 Centers od Excellence across the United States. Our region is fortunate to have these institutions as part of this outstanding program:

HDSA Centers of Excellence

Columbia Health Sciences /NYS Psychiatric Institute (NY)
University of Rochester (NY)
Albany Medical College (NY)

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the access to our nationwide database of HDSA Centers of Excellence, Support Groups, Care Facilities and Social Workers click here for our Locate Resources page.

Contact Us

Regional Development Director

Casey Snyder
505 Eighth Avenue, Suite 902
New York, NY 10018
P. (212) 242-1968 ext. 236
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