Learn More about NYA (National Youth Alliance)
HDSA’s National Youth Alliance (NYA) motivates youth to get involved in their local HDSA Chapters, Affiliates, and Support Groups in efforts through education, fundraising, advocacy and awareness for Huntington’s disease. The NYA is a collection of children, teens and young adults from across the country.
We are made up of young women and men ages 9-29 that are impacted by Huntington’s. The NYA is dedicated to our vision of being the last generation with Huntington’s disease and as an essential part of the future of HDSA; we pride ourselves on our ability to persevere throughout the years. Since 2004, NYA has grown from a small group of kids to over 500 members!
It is our mission to not only support young people within the HD community, but also inspire the youth of HDSA to get involved in the battle against HD and be proactive in this fight. We are dedicated to making ours the last genertion with Huntington’s disease.
How You Can Get Involved with NYA here in NY & NJ.
The NYA provides a wide variety of ways for the youth aged 9-29 of HDSA to become motivated with your local Chapter. The Upstate New York Chapter, Albany Chapter, Greater New York City Chpater, and the New Jersey Chapter need's your help with:
* increasing the amount of local youth support groups in the New York/New Jersey Region to ensure our members are getting the support they need locally
* educating the youth at Education Days, Symposiums and Conferences locally as well as on the national level at NYA Day and Convention
*advocacy training and proactive efforts from meetings with the Senate and Congress at home to Capitol Hill in Washington D.C.
*providing updates on NYA activities, initiatives, and fundraising efforts in the We Are the NYA newsletter
*sharing the experiences and observations of young people from all walks of life affected by Huntington’s disease through our website’s Faces of NYA section.
*attending NYA National Youth Retreats
*get your free NYA Event KIt
and host local NYA events in your community
To learn more about the National Youth Alliance and how to get more involved in your local communtiy in NY & NJ: